It takes a lot for me to admit this.  Sharing emotions and feelings is hard for me. As someone who grew up in the Midwest, you just don’t...

As I drove home today doing my best thinking, I was listening to a podcast where a woman was describing her marriage as a partnership. ...

As I noticed different symptoms, my children would often disagree with me and ascertain that this was due to me being “dramatic”.  Or,...

I am not patient.  We waited and we waited some more.  While we waited for more medical tests, we went on with our lives, adjusting to...

I am frustrated.  We transitioned from fall into the new year.  We saw general doctors, sleep specialists, neurologists, rheumatologists,...

With the thought that Roger might be depressed, doctors prescribed antidepressants for him, even though we said we didn’t feel he was...

As summer winds down and we are almost to the end of the second year, we get our appointment time at the HRMF (highly regarded medical...

I spent another 10 hours sitting down, going through each medicine Roger had been prescribed and made a new timeline of meds and their...

We got a referral to the  geneticist.  While waiting, Rogers symptoms lessened in some areas (visual disturbances) and increased in...

The geneticist called me on the commute home.  I have a long daily commute.  It’s miserable in the winters.  She informed me that Roger's...

Our kids.  Three unique individuals, all fun, dynamic beings in their own way.  So many dreams for them and with them.  How do we tell...

When we moved during the height of the pandemic, we weren’t disgruntled, but instead wanted to be closer to our kids.  Roger's...

If you're here and thinking you are reading this in "real time", you're not. I'm not my organized self anymore. That has gone out the...

I am impressed.  Recently we went to a new neurologist at a different hospital.  This neurologist is a female and has a fellow who is...

December 2024 The DAT scan shows that there is no Lewy Body Dementia.  Big sigh of relief in our household. The geneticist has already...

A little over 2+ years ago I noticed I was getting lost in conversations and I couldn’t think of words fast enough. When I was subbing...

I am not falalalalalalala. Those of you who know me know how hard it is to say those words. I don't love emotions and I'm working on it. ...

It’s an interesting place to be in.  This blog post will catch you up on where we are at in our current lives. It’s not the blog post...

Religion should be easy to talk about, right? For me, it’s about as easy to talk about as your feelings or a doctor's private female...

My son says I am a catastrophist.  I can’t be a word I can hardly spell, can I? Since this week was a light week, filled with some “good...